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The Joy and Pain of Raising a young child with ...

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The Joys and Pain Of Raising A young child With Exceptional Needs Donna McFadden ENG121 English Make up I Mr. Jonathan Alexander, Instructor March 18, 2013 The Joys and Pain Of Raising Children With Unique Needs Despite the fact that I was not the sole parent of the child of special requirements this is my personal journey in to the world of exceptional needs. No-one could have told me that when justin was forty three I would be experiencing parenthood again to a child born with Desapasionado Palsy.

Actually I was simply preparing to commemorate my twenty fifth high school reunion when I received the news that we was pregnant.

When faced with the sophisticated challenges of single parenthood you will quickly find out that love is you need. Allow me to give my account on this life altering phenomenon that fully changed the course of my mindset and direction is obviously. After a very emotional pregnancy and delivery by C-section, my son Nathan required his 1st breaths to a world of mayhem and confusion. Being rushed to the neo-natal intensive care unit weighing only some lbs a few oz, being probed and pricked by doctors and nurses to assist stabilize the very life he stepped into.

The thoughts of what my personal little angel endured getting into this world reveals his power and dedication as he begins his combat on this voyage to manhood. Life began for my own son spending his first few weeks of life within a NICU as they call it in the hospital with incubators and feeding pipes combined with the frequent care via doctors and nurses assigned to his care. Just how traumatic for both mom and child to experience the separation and detachment that is getting substituted by machines. I forced the hospital to allow myself an opportunity to live in a room in order that I could become as near my kid as I could.

I was generally there for every feeding, every diaper change, all of the testing We would sit in the NICU alongside his foundation and sing to him to reassure him that we was there. I was decided to be with my child just as much as I could through this torturous ordeal. The instructions that people had to comply with when we go back home were extreme, because of his prematurity and low beginning weight a large number of important things were still growing. I had numerous classes and seminars that we had to show up at and complete before leaving a healthcare facility. I also had to obtain a new car seats because the one which I had has not been sufficient for a premature child.

We immediately began having to parade through doctors offices on a weekly basis being tested and examined and this process essential a lot of patience and dedication. By five months olds we were back in the medical center so that Nathan would have his first surgical treatment to repair three hernias. When he recuperated it was after that time for another round of surgeries which rollercoaster ride seemed to continue for months. Through this process you’re trying to find those opportunities to get pleasure from your child, all those memorable occasions of accomplishments and breakthrough.

During these weeks I had no idea my kid has Cerebral Palsy, nor had We ever knowledgeable anyone who have been diagnosed with this disability. Whenever we got the diagnoses of Cerebral Palsy, Nathan was fourteen a few months old and a very content, determined little toddler, basically to look at him you would by no means know that he had brain damage. For me, certainly not knowing what it meant to have Cerebral Palsy actually enjoyed to my personal advantage because I don’t have an opportunity to get disappointed, but more of a determination to teach myself in what I necessary to do to assist this baby grow into a great productive person.

Just like when he was born i was thrown in the arena of occupational remedy, physical therapy, talk therapy even more doctors and test following test following test. This technique is extremely overwhelming, however required. I was just trying to handle each barrier as it emerged day-by-day with all the optimism I could muster. I had a dedication to not think negatively or get in that place of give up hope or requesting “why myself?  How can you balance the number of emotions that not only go through your thoughts, but the brains of your friends and family about the hopes and fears of the destiny of the child?

I am so grateful pertaining to my beliefs and idea system to help me preserve my durability and emotional well-being because I have no clue where I would be with out it. It was truly one of the most difficult times of my life combined with an element of appreciation for the life span and well-being of my son. Despite the fact that we are even now on this voyage a lot of progress has been made from that first day of existence in July. My positive attitude about my son’s disability have been engraved in him and i also am quite encouraged that through everything he will always be such an optimistic example of how the challenges of Cerebral Palsy will not dictate his lifestyle.

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